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Dr. Ted Love Global Blood Therapeutics Axis Advocacy at Americans for Cures – Advocate Leadership Retreat
American’s for Cures sponsored Prop 71 to fund Stem Cell Research. Stem Cell Ambassadors programs is made up of representatives of different diseases and areas of California. The summit focuses on various tactics of a grassroots organizing.
Sickle Cell Disease Association of America announces new officers and updates on their recent convention
Sickle Cell Disease Association of America, Inc. Appoints New Additions to National Staff [BALTIMORE, MD – October 27, 2016] The Sickle Cell Disease Association of America, Inc. (SCDAA) (www.sicklecelldisease.org), a not-for-profit organization dedicated to advocating for, and finding better programs and treatments for individuals living with Sickle Cell Disease and Sickle Cell Trait, announce the […]
Sickle Cell Anemia: Stem Cell Gene Therapy – A Patient’s Perspective
Nancy Rene, a patient advocate for the Sickle Cell Foundation of California, spoke to the CIRM Governing Board at the “Spotlight on Disease Team Awards: Stem Cell Therapy for Sickle Cell Anemia” seminar. Through photos and stories, Rene described the impact of sickle cell anemia on her grandson’s life. She also spoke about the importance […]
Sickle Cell Disease, a roadmap for getting to excellence everywhere
This article originally from ajpmonline.org The U.S. has made enormous progress in the care of people with sickle cell disease (SCD) over the past 4 decades. Even in the absence of the discovery of new medications, median survival has increased dramatically from death typically occurring during early childhood in the 1970s to survival now in the […]
Axis Advocacy Board Members Cecil McLinn and Nancy Rene on Sickle Options website’s Video Library
Axis Advocacy Board Members Cecil McLinn and Nancy Rene on Sickle Options website. Check out the Sickle Cell Options video library.