“There is no disease bigger than sickle cell in terms of bias and disrespect. Many clinicians dislike taking care of people with sickle cell disease because of issues around pain management. When you add in race, it’s a perfect storm.”
~Mary Catherine Beech, Professor of Medicine at the Johns Hopkins School of Medicine
Creating Accountability in Healing for Sickle Cell Disease Patients Worldwide.
The refusal of care to a Sickle Cell Patient usually by-but not limited to-those in healthcare. The neglect is usually for arbitrary reasons-emotions, stigmas, racial bias-that is rooted in miseducation instead of science-based care, patient knowledge or experiences.
AXIS ADVOCACY PATIENT HEALTH ADVOCATE TRAINING
A three month program divided over 4 courses ( Basic SCD Medical, Medical Technology and APPS, HIPPA Certification and Medical Law/Policy and Patient Bedside Advocacy) designed to give the student a well-rounded foundation upon which they can either begin a career in Advocacy or advance their Advocacy skills for the purpose of helping themsleves or a loved one.