Sickle Cell Disease: The Pain and the Promise By Nancy M. Rene, co-founder, Axis Advocacy The Disease Sickle Cell Disease is a group of inherited red blood cell disorders. It is the most common genetic disease in the US. Close to 100,000 Americans have sickle cell disease. Although it affects persons of African descent, it […]
In an effort to identify unmet medical needs for people with SCD, the American Society of Hematology (ASH), along with other groups, issued the State of Sickle Cell Disease: 2016 Report, evaluating the disease in four priority areas — access to care, training and professional education, research and clinical trials, and global health. The report […]
Red blood cells contain hemoglobin, a protein that carries oxygen throughout the body. People with sickle cell anemia have inherited 2 abnormal hemoglobin genes that can cause their red blood cells to become rigid and sickle shaped. When these stiff and sticky cells clump together, they can impede blood flow in small blood vessels and […]
In California, 51 percent of adult patients with sickle cell disease (SCD) live in Los Angeles County, which lacks an adult SCD clinic. As a result, coordinators from the U.S. Health Resources and Service Administration’s Sickle Cell Disease Treatment Demonstration Program (SCDTDP) decided to address this gap in care. Read more on nichq.org bySonya Spillmann, […]
Sickle Cell Educational Seminar – Axis Advocacy