Axis Advocacy Attending The 10th Annual Sickle Cell in Focus

day2

Sickle Cell in Focus (SCiF) is an annual two-day intensive and educational conference co-hosted by the National Heart, Lung and Blood Institutes (NHLBI) in Washington, DC and the South Thames Sickle Cell & Thalassaemia Network (STSTN) in London, UK. It highlights and discusses the emerging clinical complications and clinical management of sickle cell disease. The clinical and scientific research lectures are aimed at an audience of consultants, academics, trainee doctors and health professionals involved in the care of patients with the disease. It attracts local, national and international guest speakers and delegates.

hd_video_icon WATCH: Sickle Cell in Focus Conference 2016 – Day 2

Axis Advocacy covered the events.

Day 2: June 3rd, DAY TWO: FRIDAY 3rd JUNE 2016

Dr Stephen Chanock talks about genetics and genomics in clinical studies –potentials and pitfalls.

Dr. Swee Lay Thein speaks on the impact of genetics and genomics in sickle cell disease.

Dr. John Tisdale, organizer of the conference talks about gene therapy.

Axis Advocacy (Adrienne and Nancy) during the first break and conversing with colleagues.

Dr. Dan Bauer from Children’s Hospital Boston talks about the application of genome editing in Hemoglobin disorders.

Dr. David Rees speaks about environmental determinants of disease severity.

Kwaku Ohene-Frempong mentions the affect of swimming for sickle cell patients.

Axis Advocacy with Dr Novell – University of Pittsburgh

T-Shirt reads:
“We Don’t Know How Strong We Really Are Until Being Strong Is The Only Choice – Sickle Cell Strong”

Axis Advocacy with Helen Warner – National Institute of Health  

Dr. Jane Hankins discusses expanding use of hydroxyurea in sickle cell disease.

Dr. Stella Chou speaks on blood transfusion, alloimmunization, and role of genotyping for variant antigens.

Dr. Kenneth Ataga speaks on coagulation activation in sickle cell disease.

Debate: High mortality in young adults is due to breakdown in transition to adult care?

Chair: Kathy Hassell (Center) with Dr. Sophie Lanzkron (NO, left) and Dr. Mariane de Montalembert (YES, right)

Dr. Mariane de Montalembert provides her YES argument.

Dr. Sophie Lanzkron provides her NO argument.

Dr. Jane Hankins gives her response to the debate.

Adrienne Shapiro of Axis Advocacy talks from her personal experience on raising a daughter with sickle cell.

Adrienne Shapiro laughs in response to Dr. Sophie Lanzkron’s praise of her (Adriennes) experiences.

Conclusion

This concludes day 2 and final day of The Sickle Cell in Focus (SCiF) conference, Washington D.C.