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November 2016

Free Webinar – Register before November 3rd: Venous Thromboembolism in Children and Young Adults: State-of-the-Art in Diagnosis, Treatment, and Prevention

November 3, 2016 @ 12:00 pm - 1:00 pm
FREE

In this upcoming CDC webinar, Neil Goldenberg, MD, PhD, Director, Thrombosis Program, and Director of Research, Johns Hopkins All Children’s Hospital, and Associate Professor of Pediatrics, Division of Hematology, Johns Hopkins University School of Medicine, will present an overview of VTE in children and young adults. He will discuss what is currently known about risk factors, diagnosis, treatment, outcomes, prognostic factors, and prevention strategies. He will also discuss what’s known about obesity and its relationship to VTE risk in young patients. Finally, he will address approaches to the early diagnosis and optimal management of challenging scenarios in young-onset VTE, including May-Thurner anomaly and venous thoracic outlet syndrome.

Alex C. Spyropoulos, MD, FACP, FCCP, FRCPC, Professor of Medicine, Hofstra Northwell School of Medicine, will serve as moderator.

This webinar is free and open to public health professionals, clinicians, and researchers who desire more information about venous thromboembolism and blood disorders. Advance registration is required and the number of attendees is limited.

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Webcast: CDC’s Public Health Grand Rounds Presents: “Improving the Lives of People with Sickle Cell Disease”

November 15, 2016 @ 10:00 am - 11:00 am

CDC's Public Health Grand Rounds Presents: "Improving the Lives of People with Sickle Cell Disease" Tuesday, November 15, 2016 1:00 p.m. - 2:00 p.m. EDT (10-11 am PST) Live external webcast via the Webcast Links section of the CDC website.   Presented By:   Mary Hulihan, DrPH Health Scientist, Epidemiology and Surveillance Branch Division of Blood Disorders National Center on Birth Defects and Developmental Disabilities, CDC "Using Data to Understand Gaps in Care and Outcomes"     Kim Smith-Whitley, MD Medical Director,…

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WEBINAR: Translating Health Services Research in SCD to Policy

November 30, 2016 @ 11:30 am - 12:30 pm

Wed, Nov 30, 2016 10:00 AM - 11:30 AM PST 1. Click the link to join the webinar at the specified time and date:  https://applauncher.gotowebinar.com/#notStarted/8870443476080300290/en_US Before joining, be sure to check system requirements to avoid any connection issues. Note: This link should not be shared with others; it is unique to you. 2. Choose one of the following audio options: TO USE YOUR COMPUTER'S AUDIO: When the webinar begins, you will be connected to audio using your computer's microphone and…

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December 2016

CalABLE Stakeholders’ Meeting Session 1: Alhambra, CA

December 28, 2016 @ 2:00 pm - 4:00 pm
Eastern LA Regional Center, 1000 S. Fremont Ave.
Alhambra, CA 91802 United States
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ELARC ~ ALHAMBRA California Achieving a Better Life Experience (CalABLE) is a new program that will allow people with disabilities to establish tax-advantaged savings accounts with the ability to save up to $14,000 (currently) per year and up to $100,000 in total without losing vital public benefits such as Medi-Cal, SSI or SSDI. Must be disabled before age 26 AND Currently receiving, or eligible for, SSI/SSDI OR Self-certification: Has been diagnosed by a qualified physician with a physical or mental…

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CalABLE Stakeholders’ Meeting Session 2: Alhambra, CA

December 28, 2016 @ 4:00 pm - 6:00 pm
Eastern LA Regional Center, 1000 S. Fremont Ave.
Alhambra, CA 91802 United States
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ELARC ~ ALHAMBRA California Achieving a Better Life Experience (CalABLE) is a new program that will allow people with disabilities to establish tax-advantaged savings accounts with the ability to save up to $14,000 (currently) per year and up to $100,000 in total without losing vital public benefits such as Medi-Cal, SSI or SSDI. Must be disabled before age 26 AND Currently receiving, or eligible for, SSI/SSDI OR Self-certification: Has been diagnosed by a qualified physician with a physical or mental…

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CalABLE Stakeholders’ Meeting Session 3: Uptown Whittier, CA

December 29, 2016 @ 10:00 am - 12:00 pm
Uptown Whittier Senior Center, 13225 Walnut Drive
Whittier, CA 90602 United States
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 Uptown Whittier Senior Center ~ Whitter California Achieving a Better Life Experience (CalABLE) is a new program that will allow people with disabilities to establish tax-advantaged savings accounts with the ability to save up to $14,000 (currently) per year and up to $100,000 in total without losing vital public benefits such as Medi-Cal, SSI or SSDI. Must be disabled before age 26 AND Currently receiving, or eligible for, SSI/SSDI OR Self-certification: Has been diagnosed by a qualified physician with a…

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CalABLE Stakeholders’ Meeting Session 4: Uptown Whittier, CA

December 29, 2016 @ 4:00 pm - 6:00 pm
Uptown Whittier Senior Center, 13225 Walnut Drive
Whittier, CA 90602 United States
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 Uptown Whittier Senior Center ~ Whitter California Achieving a Better Life Experience (CalABLE) is a new program that will allow people with disabilities to establish tax-advantaged savings accounts with the ability to save up to $14,000 (currently) per year and up to $100,000 in total without losing vital public benefits such as Medi-Cal, SSI or SSDI. Must be disabled before age 26 AND Currently receiving, or eligible for, SSI/SSDI OR Self-certification: Has been diagnosed by a qualified physician with a…

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January 2017

Register Now: Jan. 25 Webinar – Creating a New SCD Clinic: A Case Study

January 25, 2017 @ 10:00 am - 11:00 am
California Rare Disease Surveillance Program (CRDS), 850 Marina Bay Parkway, Bldg. P
Richmond, CA 94804 United States

The California Rare Disease Surveillance Program invites you to attend a webinar, Creating a New SCD Clinic: A Case Study, to find out how a few dedicated professionals created a new county clinic in South Los Angeles, uniquely qualified to serve the population that needed its services the most.  Doctors, public health and patient advocates will describe what it takes to create and maintain a new SCD clinic on Wednesday, January 25, 2017, from 10-11 am PST (1-2 pm EST). Register here:  https://attendee.gotowebinar.com/register/5503505776450805764 The agenda will…

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February 2017

Stem Cells and The Cure

February 6, 2017
Axis Advocacy care of St. James United Methodist Church, 2033 E. Washington Blvd.
Pasadena, CA 91104 United States
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The State of Sickle cell disease with Dr. Kohn, Global Blood Therapeutics and Dr.Nihara. Actual date and time TBD.

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Protecting Health Care, Medicaid, SSI and more Webinar

February 23, 2017 @ 12:30 pm - 1:00 pm
Free

The 115th Congress convened with many Members pushing for an ambitious agenda to repeal or cut many critical programs that people with disabilities rely on for their health and wellbeing.  Health care, Medicaid, and the Supplemental Security Income (SSI) program could all be on the chopping block. Get up to date and take action! Please join The Arc's policy staff to learn about latest developments on Capitol Hill and what advocates must do to protect the Lifeline for people with…

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