Events Search and Views Navigation
September 2016
Enhancing Access to Care in South Carolina, Webinar
Enhancing Access to Care in South Carolina (Online Webinar) The California Rare Disease Surveillance Program invites you to attend a webinar to hear Dr. Julie Kanter-Washko talk about South Carolina's efforts to enhance access to care for patients with sickle cell disease (SCD) on September 22, 2016, from 10-11 am PST (1-2 pm EST). Dr. Kanter-Washko is the director of sickle cell disease research at the Medical University of South Carolina. The agenda will include a brief update on California's Sickle Cell…
Find out more »November 2016
Free Webinar – Register before November 3rd: Venous Thromboembolism in Children and Young Adults: State-of-the-Art in Diagnosis, Treatment, and Prevention
In this upcoming CDC webinar, Neil Goldenberg, MD, PhD, Director, Thrombosis Program, and Director of Research, Johns Hopkins All Children’s Hospital, and Associate Professor of Pediatrics, Division of Hematology, Johns Hopkins University School of Medicine, will present an overview of VTE in children and young adults. He will discuss what is currently known about risk factors, diagnosis, treatment, outcomes, prognostic factors, and prevention strategies. He will also discuss what’s known about obesity and its relationship to VTE risk in young patients. Finally, he will address approaches to the early diagnosis and optimal management of challenging scenarios in young-onset VTE, including May-Thurner anomaly and venous thoracic outlet syndrome.
Alex C. Spyropoulos, MD, FACP, FCCP, FRCPC, Professor of Medicine, Hofstra Northwell School of Medicine, will serve as moderator.
This webinar is free and open to public health professionals, clinicians, and researchers who desire more information about venous thromboembolism and blood disorders. Advance registration is required and the number of attendees is limited.
Find out more »Webcast: CDC’s Public Health Grand Rounds Presents: “Improving the Lives of People with Sickle Cell Disease”
CDC's Public Health Grand Rounds Presents: "Improving the Lives of People with Sickle Cell Disease" Tuesday, November 15, 2016 1:00 p.m. - 2:00 p.m. EDT (10-11 am PST) Live external webcast via the Webcast Links section of the CDC website. Presented By: Mary Hulihan, DrPH Health Scientist, Epidemiology and Surveillance Branch Division of Blood Disorders National Center on Birth Defects and Developmental Disabilities, CDC "Using Data to Understand Gaps in Care and Outcomes" Kim Smith-Whitley, MD Medical Director,…
Find out more »WEBINAR: Translating Health Services Research in SCD to Policy
Wed, Nov 30, 2016 10:00 AM - 11:30 AM PST 1. Click the link to join the webinar at the specified time and date: https://applauncher.gotowebinar.com/#notStarted/8870443476080300290/en_US Before joining, be sure to check system requirements to avoid any connection issues. Note: This link should not be shared with others; it is unique to you. 2. Choose one of the following audio options: TO USE YOUR COMPUTER'S AUDIO: When the webinar begins, you will be connected to audio using your computer's microphone and…
Find out more »January 2017
Register Now: Jan. 25 Webinar – Creating a New SCD Clinic: A Case Study
The California Rare Disease Surveillance Program invites you to attend a webinar, Creating a New SCD Clinic: A Case Study, to find out how a few dedicated professionals created a new county clinic in South Los Angeles, uniquely qualified to serve the population that needed its services the most. Doctors, public health and patient advocates will describe what it takes to create and maintain a new SCD clinic on Wednesday, January 25, 2017, from 10-11 am PST (1-2 pm EST). Register here: https://attendee.gotowebinar.com/register/5503505776450805764 The agenda will…
Find out more »February 2017
Protecting Health Care, Medicaid, SSI and more Webinar
The 115th Congress convened with many Members pushing for an ambitious agenda to repeal or cut many critical programs that people with disabilities rely on for their health and wellbeing. Health care, Medicaid, and the Supplemental Security Income (SSI) program could all be on the chopping block. Get up to date and take action! Please join The Arc's policy staff to learn about latest developments on Capitol Hill and what advocates must do to protect the Lifeline for people with…
Find out more »